Read and listen to experiences from people who either live with neuromuscular conditions or support family members with a condition. They share their insights alongside advice from professionals on this platform. Their stories and advice are intended to give you hope and boost your confidence to live the life you want.
The Centre for Neuromuscular Diseases (NMD) at University College London Hospital developed this platform in partnership with the social enterprise Bridges Self-Management, which is an expert in evidence-based approaches to co-production and self-management support.
Neuromuscular disease is an umbrella term for many different conditions such as:
Myotonic Dystrophy, Motor Neuron Disease, Kennedy’s Disease, Myositis, Muscular Dystrophy, Glycogen Storage Diseases, Spinal Muscular Atrophy, Charcot-Marie-Tooth, Disease, CMT, Duchenne Muscular Dystrophy, and Neuromuscular disease.
This app combines peer support and professional advice and can be used on its own as a self-help tool or as an adjunct to rehabilitation sessions with a professional.